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About ALS

What is ALS?

Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease that harms cells in the brain and spinal cord that are needed to keep muscles active. This means that ALS leads to muscle weakness and eventually a loss of function. Other names for ALS include Motor Neuron Disease (MND), Lou Gehring’s Disease, and Charcot’s disease. 

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It is predicted that about 30,000 people in the United States of America have ALS. Although it is hard to diagnose, a few early symptoms of ALS are muscle cramps and muscle twitching, weakness in hands, legs, and feet, as well as difficulty speaking and/or swallowing. The five senses (hearing, sight, smell, taste, and touch) and cognitive function, however, are not affected. 

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Additionally, the disease is not experienced by everyone in the same way. The progression of ALS can vary from person to person. Statistically, the majority of people live about 3-5 years after they experience the first signs of the disease. However, some people do survive for 10 years or more.

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Is there a cure for ALS?

At the moment, there are no known cures or treatments to stop ALS. It is an intricate disease that affects everyone differently. More research is going on every day.

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Sources

https://www.als.net/what-is-als/

https://www.health.harvard.edu/diseases-and-conditions/what-is-als

https://ed.ted.com/lessons/why-is-it-so-hard-to-cure-als-fernando-vieira

https://www.massgeneral.org/neurology/als/research/platform-trial

"I might have been given a bad break,
but I've got an awful lot to live for."

 

Lou Gehrig

July 4, 1939

Our Mission

We want to use our experience with ALS to educate our friends and family about this disease, increase the support of organizations focused on therapies and the care of ALS patients and their families, and continue to honor our beloved Mom and Deb whom we lost on March 13, 2022. 

Our Vision

We believe that words and intentions must become our actions, so we built this site to keep us all connected and accountable to each other. We now want to honor Deb's memory through the creation of the Debra M. Williams ALS Fund and support the continuing progress toward ALS therapies while w come alongside others engaged with their own ALS journey.  

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